For all of you who have wondered if we have dropped off the face of the earth, a resounding no! But I do find it difficult to make myself sit down and post and besides it's not like you all want to know about my days at work. The girls have spent their summer with Twalla, reading, jumping, practicing their listening skills (not really, but we try), playing NCIS with sandwich bags, medicine droppers and dirt. Destry and I went to Boston for a work conference for me, that was fun. Destry checked out the BAC, where he may attend for his Masters in Architecture. Yesterday we went to Buttonwood Farms to see the sunflowers. It was great fun! We took a hayride through the farm. We saw cows, chickens and pigs, and fields of beautiful sunflowers. So far that is the extent of our summer. Pretty boring, but....that's what happens when we have school to pay for. And honestly we wouldn't have it any other way right now. We have truly felt the Lord's hand in our lives these past months, and we are forever grateful for his love. Enjoy the pictures!!!
Just wanted to share what my amazing husband is learning and doing in school....
Destry had to design this cube thing on paper, and then create it in 3-d, and had to make it into useable, living space. The model, as you can see, lifts apart so that the roof comes off, then the second floor comes out so you can see the first floor. Pretty neat I say...
It has been quite a while since I have posted anything. I will give you a quick update now that you have been showered with pictures. Last month we went to Boston to spend time with Destry's brother and his family. It was so much fun, (except for the air mattress, couldn't hold air straight out of the box, thanks Wal-Mart) to spend time with Devin, Nicole and Jonas. Thanks so much for your willingness to have 5 more people crash your 1 bedroom apartment in the heart of downtown Boston!!! Sweet memories that shall live forever. We were able to walk some of the Freedom Trail, go to the Boston Common Park, Boston Children's Museum (the best place ever!!!) and Mike's Pastry Shop, oh glorious pastries!!!!
We then had Easter, which was a great relaxing Sunday filled with yummy food and great family. Other than that, we have been crazy busy with Destry at school (18 credits this quarter) and he has a 3.81 GPA and currently has straight A's in all his classes. He is doing so well and LOVES all of his classes and can't wait to be a fully licensed Architect, which will be in about 5-7 years....wish it was sooner, but at least he knows now what he wants to be when he grows up.
I am still working at a Dermatology office, but have now been put in charge of helping their marketing and relationships between our office and the referring doctors offices. I am excited about this new challenge.
Brynn is doing well, no new episodes as of yet. We have her appointment set for May 14th with the Genetics and Cardiology Clinic at Yale. I wish time would go a lot faster for this. I so want to know why her little heart did funky things, and if they will ever happen again.
Keagyn is as wonderful as ever. She can now write her name!!! I love watching her grow and mature it is beautiful and breathtaking.
Auryana is trying her best to communicate with us using her own language. However, the other day I came home from work and she came around the corner and said, "Momma, momma, momma." Sweet music to my ears, but hasn't said it again. She is the goofiest thing ever and we enjoy her tremendously.
Brynn came home from the Yale late Friday night and is doing well. As a matter of fact you would never know that anything even was wrong with the peanut. For those of you who haven't heard, Brynn had four episodes that including passing out, unconciousness and vomiting while trying to come out of it, last Tuesday. Two of the episodes happened at Twalla's house, one in the ambulance ride and the last in the ER at L&M hospital. The last two were caught while she was on a heart monitor. Which was good, because they caught some arryhthmias (?) One was a AV Block, quite normal, not too much concern and the other was a Mobitz type II AV Block, which can lead to full cardiac arrest. Just what every mother wants to hear right? Well, the decision was made to send her to Yale. She spent 2 days in the ICU there being monitored around the clock, having EKG's, ECG's, CT's, ultrasounds, blood work, etc. All the tests came back normal. Which is good, but didn't provide any answers as to why her little heart had this problem. She has had perfect sinus rhythm ever since too. So they sent her blood work off to Texas for Genetic testing. There is a syndrome called Heart-Hand syndrome. Pretty much what they are seeing is if there is a connection between her nubbie and her syncope episodes that she had. We found out that with this syndrome the same proteins that build the upper extremities also build the heart and when there are abnormalities with the upper extremities there can be associated heart issues. If she does have this, then her heart will continue to deteriorate over time, and the option is a pacemaker. While we are not thrilled with this news, it would be nice to know why her heart "stopped" working for a few seconds, instead of chalking it up to a "freak" incident, that may or may not happen again. Oh, and did I mention that the genetic testing takes up to 2 months for the results!!! Happy waiting game........well that was a lot of information to unload, but it does feel good to have that off my chest. Please keep Brynn in your thoughts and prayers over the next few months. We will keep you updated on her status.
And to all of you have already had Brynn in your thoughts and prayers, thank you oh so much. We have felt the strength and it has been great!!!
I can't believe how time flies, and that the little munchkin has turned 1! But she is adorable, and spunky. She has been walking now for a little over month, her favorite word is wowwww. She can pull the funniest faces including a really good stink eye for no apparent reason whatsoever. She is easy going and very patient, which is good considering what her big sisters put her through sometimes. She is a daddy's girl I would say, but I think that Destry would say she is a momma's girl, but none the less she is a keeper for our family. We are so glad that she is here to bring us such joy and love in our home.
Was going to post pictures with this, but they won't load....big time bummer :(